"SHAME ON YOU"

Ooops... Wrong Planet! Syndrome is the creation of jypsy (Janet Norman-Bain). It began in 1995 as a personal work by a mother of four, in the village of Oyster Bed Bridge, Prince Edward Island. Today the original site is an Internet standard in autism information and education.

Raising two Autistic children and being Autistic herself, and in spite of the extraordinary challenges in a life further complicated by Multiple Sclerosis, Ooops... Wrong Planet! Syndrome remains an intimate, artful, and up to date expression of jypsy's wish. Jypsy's long wish, her work, has been to share her understanding and years of experience with others.

The page you are reading now is about events that unfolded in January of 2001, events that began in 1998, with a routine request to link to Ooops... Wrong Planet! Syndrome. The request, from the president of New York Families for Autistic Children, would grow into an example of coercion and exploitation - an example of a sobering truth.

Ralph Smith


GUESTBOOK ENTRY:
[1998-09-14 16:04:51]
Comments: I would like to talk to you further. I am the president and founder of NY Families for Autistic Children. Please give me a call when you can 718-641-6711

JYPSY:
Hi,
Thanx for your note. A couple of problems.....1) I don't do phones unless absolutely neccessary (an aspie thing I guess) and 2) I am too poor to make long distance calls. However I'll email all you like and discuss anything you want. Sorry.
-jypsy

BAUMANN:
[04:09 PM 9/20/98 -0400]
I wanted to talk to you about your "everything you ever wanted to know about Autism link A to Z" I think it's fabulous... New York Families for Autistic Children, Inc. is developing an internet site and would be honored if you would let us include a link to your A to Z directory.. I ask your permission because I know that alot of work went into it and I respect that.
Thanks.... Andrew Baumann President NYFAC

JYPSY:
Certainly! Feel free to link to that page or any other pages of mine. The work is a labour of love and a gift to all those who find it useful. My aim is to share what I know with the folks who need it. Do let me now when your page is set up and I'll link to it too.
All the very best
-jypsy

BAUMANN:
[10:30 AM 9/27/98 -0400]
Hi it's Andrew Baumann from NYFAC. (New York Families for Autistic
Children).
A number of my parents have inquired about a new hormone called Secretin that is being used on kids w/autism.. I can't find anything about it but I thought you possibly could help. Maybe if you had a minute you could do a more extensive search than i can? If you find anything please forward the info to me.... Thanks for the help
Andrew
PS .. I hope this note finds you in the best of health and happy!!!!

JYPSY:
Hi Andrew,
Ok, go to www.dejanews.com and type in "secretin autism" and you'll get 24 posts from the autism lists talking about it. That should tell you all you need to know and supply leads
I am not at all in the best of health so bear with me. As well as AS I have MS and a few other nasties. But keep those good health wishes coming my way, it all helps
I'll be in touch
all the very best
-jypsy

BAUMANN:
[02:39 PM 12/2/98 -0500]
Hi!!! I hope this e-mail find you happy..... Remember me...Andrew Baumann from New York families for Autistic Children...... Well we finally did it..
Our web site is up at www.nyfac.org.... As discussed I am linking us to
your A-Z links...thanks again for permission.... hope to hear from you
soon.... please add us to your link page

JYPSY:
[01/29/99]
hi
sorry this reply is late...just to let you know your site was added (a while back)
all the very best
-jypsy

NO REPLY...

JYPSY:
[January 09, 2001 10:41 AM]
Subject: PLAGIARISM!!!!!!!!!!!!
The idea that you would take HUNDREDS of hours of my work, put it on your web site, COPYRIGHT it and call it yours makes me ?????. Why not just link to my link page then at least the links with stars would work, it would be up to date and credit would be where credit is due. 
One more move that makes Autistics wonder how you folks work.... 
-jypsy

BAUMANN:
please allow me to begin by apologizing for any oversight on our part.... If 
you remember we got your permission to use you site as our links page..... 
It seems that when we hired an outside consultant to re-vamp our site...he 
deleted all notations to you..... please accept my sincere apology and give 
me a little time to correct this.... Andrew Baumann

JYPSY:
[10 Jan 2001 07:39:35 -0400]
As you can see by the below Email [see >02:39 PM 12/2/98 -0500< above]
we discussed and you were going to LINK to my A-Z page, not steal it. Clearly that is what I gave my permission for you to do.
-jypsy

BAUMANN:
[09:54 PM 1/18/01 -0800]
I have added to the top of the links page credit to you and a direct link to your site.... I plan to work with my web designer within the next few weeks (*****)to change the whole layout of the links page.... please again accept my gratitude for all you do... and apologies for any mis-communications there might have been on my part..... Andrew Baumann 
(******) please give me a little time as I am right now in the midst of a legislative initiative in NY State ...we are hosting a legislative breakfast in the capital and have over 100 politicians scheduled to attend.... Its...driving me crazy.....so much to do ...so much to prepare for.... side note... There is a legislative proposal by the NY state Assembly to officialy designate April as autism awareness month in NY state. This could and should come with monies to spread the word.... thanks for your understanding

JYPSY:
At 09:54 PM 1/18/01 -0800, you wrote:
> I have added to the top of the links page credit to you and a direct link to your site.... <
thanx for asking
> I plan to work with my web designer within the next few weeks (*****)to change the whole layout of the links page.... please again accept my gratitude for all you do... and apologies for any mis-communications there might have been on my part..... Andrew Baumann <
"apologies for any mis-communications there might have been on my part." Excuse me?
I do NOT want my name associated with your page. I NEVER gave you permission to USE my links, I gave you (and MANY MANY others)
It's still copyrighted from 1998. 
MY pages don't work because http://www.isn.net/jypsy/ should be added to the front of all my own pages (the ones with *'s). 
It's out of date.
It's ugly. 
I don't want my name attached to it.
We all know what "LINK" means. Surely YOU didn't mean that *I* should download and keep updated your homepage when you asked that I link to you.
Please....
Remove the page you have stolen from me 
or "LINK" directly to http://www.isn.net/~jypsy/autilink.htm from, your homepage or, link page with no sign of my stolen page there.
> (******) please give me a little time as I am right now in the midst of a legislative initiative in NY State ...we are hosting a legislative breakfast in the capital and have over 100 politicians scheduled to attend.... Its...driving me crazy.....so much to do ...so much to prepare for.... side note... There is a legislative proposal by the NY state Assembly to officialy designate April as autism awareness month in NY state. This could and should come with monies to spread the word.... thanks for your understanding <
I don't understand. It takes PEOPLE not MONEY to spread the word. I'm co-hosting an International Symposium in April to do just that. Monies- my husband (sole source of income) was laid off yesterday, (we knew it was coming) and we are back on social services/welfare and UIC. If this is where we trade sob stories try my moccasins.... While I fight politicians, service organizations and whoever here for monies and services for my 2 sons on the spectrum on a DAILY basis YEAR AFTER YEAR, (13 now) and now myself (AS and MS-Multiple Sclerosis. AS...you should know about....MS has taken most of my sight daily, my balance, given my Epilepsy (3 kinds of seizures) and crushing fatigue while turning my brain into a sieve..... ) *I* would never just let a wrong go.
Changing a web page is not hard or time consuming. I should know.
Just what was the word you wanted to put out on Autism? That we're exploitable and feeding politicians breakfast is more important than righting that? 
Word can get out......have you seen all those Autism Mail Lists I have www.isn.net/~jypsy/mailist.htm ? Wanna know how many I'm connected to? I hear there's a "SHAME ON YOU" Website already built.........Word can get out....FREE....to thousands!! Your hit count might go up for a time but your mail box may fill up with letters from folks not too impressed by your move People who are linked to you may reconsider.......who knows, your name, your organization's, may tarnish in the faces of even those you "serve". 
don't choke on your toast
-jypsy

JYPSY:
[21 Jan 2001 17:33:19 -0400]
Mr Baumann,
I am getting sick of this. The more I look, The sicker I get... inviting people on every page "NEED MORE INFORMATION ABOUT AUTISM? CHECK OUT OUR LINKS" I may be Canadian and Hillary may have no Email address, but I have good STRONG New York connections and her address to write to and I will. Just to let her know the bull-headed, rip-off organization she's (about to?) support.
I want the requests of my last letter honoured by the end of the day, Monday January 22nd 2001, or I'll send my letter to the mail lists and leave it in the hands of the people. 
I Reiterate :
Remove the page you have stolen from me 
or "LINK" directly to http://www.isn.net/~jypsy/autilink.htm from, your homepage or, link page with no sign of my stolen page there.
AND NOW do something about that button on the top right corner of every page so that it makes sense depending on what steps above you have taken. 
-jypsy

BAUMANN:
[21 Jan 2001 23:09:03 -0800]
thank you for all your kind words.... As soon as I can get my web guy on the phone all traces of you and your sight will be removed permanetely from my site. please do not contact me again.

BAUMANN:
[02:48 PM 2/10/18 -0800]
I just received an e-mail from someone who says that they will tell everyone they know not to have anything to do with my organization. While this is perfectly allright, and it is a personal choice, he sites you as the reason why.... I ask you this... we have had a falling out....you and I ... I have apoligized...i have rectified the situation...(hopefully to your satisfaction) if not let me know ... This is my problem... my organization provides services to over 400 families in NYC and countless others throughout NY State.. We offer educational, support, and recreational programs to ALL families that have a child with any autism spectrum disorder... Is it fair to penalize them for our problem? I did not get into this to hurt families...but to try and unify them..... If you and I can start fresh... If you and I can have another chance.... If you and I can come to some sort of working agreement I would be a very happy person. I would very much like to include ( and Highlight) a link to wrong planent syndrome.... if we can please give me the requirements to do so..... I await your response..... Thank you.....
ps... I remeber you are not comfortable on phones but if you would like to talk personally I am at your disposal 718-641-6711 Andrew Baumann

JYPSY:
[Feb 13, 2001]
What happened to : "Date: Sun, 21 Jan 2001 23:09:03 -0800 
Organization: NYFAC 
thank you for all your kind words.... As soon as I can get my web guy on the phone all traces of you and your sight will be removed permanetely from my site. please do not contact me again." ?
-jypsy

BAUMANN:
[11:34 AM 2/14/18 -0800]
I did say I wanted to statr fresh with you...is that possible?

JYPSY:
[Fri, 16 Feb 2001 07:39:41 -0400]
The only thing I want is that in future SAY WHAT YOU MEAN, MEAN WHAT YOU SAY, AND DO WHAT YOU SAY YOU WILL DO will govern your behaviour - but I have no wish to "start fresh" with you

A fuller account of the background to this article is available in Dinah Murray's
Wrong Planet Syndrome
Ooops... Wrong Planet! Syndrome (1995) Ooops... Wrong Planet! Symposium (2000) and all respective logos and graphics are copyright jypsy (Janet Norman-Bain)
February 13, 2001 | May 4, 2005
URL: http://www.sentex.net/~nexus23/shame_2304.html